Monday, April 27, 2020

Kruse's Keys: Read "Blessed Child" to Grapple With Miracles and Sorrow

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I'd forgotten about the author Ted Dekker. Some time 10 years ago or so I'd read through 4 or 5 of his books in a row--he's a great suspense/thriller Christian writer admittedly a narrow, strange niche.

"Blessed Child" was in a pile of books that my sister gave us during our evacuation to pass the time while in quarantine. Turns out its partially set in Ethiopia!

The premise is that an American baby named Caleb is given to an Ethiopian monastery after his mother is murdered by invading Eritrean forces. 10 years later his life is in jeopardy and a Peace Corps worker and Red Cross nurse rescue him and take him to the U.S. In the United States, we discover that Caleb can heal people and that senior politicians want him dead. This political thriller unfolds as the central characters grapple with the idea of miracles in the modern age and what is more important: healed hands or healed hearts?

Dekker does a good job in unpacking some difficult questions that many skeptics (and believers) have such as why do some people get healed and other die? Why is there evil if God is all powerful? There's no easy answers to any of this genre of questions but the author provides a solid framework by which we can consider them.

See our 202020192018201720162015 and 2014 Reading Lists.

Key Quotes:

Whoever said that a straightened hand was more dramatic than a healed heart anyway?

“Remember, Caleb, words are weak instruments of love. They can do many things, but they do not carry the truth like your hands do. People need to be shown, not told.”

Friday, April 24, 2020

Kruse's Keys: Read "Being Mortal" Now for the Sake of Your Loved Ones

Early on Gawande captures the decision that we will all make (ideally) before we grow old: “how to make life worth living when we’re weak and frail and can’t fend for ourselves anymore.” More specifically, he seeks to find out “how [can] people age without having to choose between neglect and institutionalization?” Notably, he acknowledges that the challenge to answering these questions is largely a structural one: “How can we build a health care system that will actually help people achieve what’s most important to them at the end of their lives” instead of the current medical status quo and culture that is is built on chasing the long shot--the “medical equivalent of lottery tickets”--on treatments that likely won’t work but near nothing on preparing the patients for the certainty that the treatments won’t work. Most frightening is his conclusion that for the majority of the medical community “hope is not a plan, but it is our plan.”

Unfortunately not everyone works through all this thoughtfully for themselves, let alone with aging loved ones (i.e., parents, grandparents etc.) early enough or often enough. “Being Mortal: Medicine and What Matters in the End” seeks to fill that gap with not only a lifetime of applicable medical anecdotes and history but also the wisdom gleaned through the surgeon author’s own personal and professional struggles with aging patients, friends and family members.

With the largest living generation (baby boomers) entering into the later stages of life this book is an essential must-read for nearly everyone. “Being Mortal” is a quick read that will challenge your assumptions and understandings about how the medical community treats (and largely fails to treat) its patients as they work through difficult decisions that will directly affect their own quality of life when it matters most.

Most useful are a series of questions that he recommends that families work through together every few years as loved ones get into their latter years.  It's important to revisit these questions since my 50 year-old self might have different answers than my 75 year-old self.
  1. Do you want to be resuscitated if your heart stops?
  2. Do you want aggressive treatments such as intubation and mechanical ventilation?
  3. Do you want antibiotics?
  4. Do you want tube or intravenous feeding if you can’t eat on your own?

If one’s health is compromised by illness he highlights these questions to consider:
  1. What do you understand the prognosis to be?
  2. What are your concerns and hopes about what lies ahead?
  3. What kinds of tradeoffs are you willing to make?
  4. If your health worsens, how do you want to spend your time?
  5. Who do you want to make decisions if you can’t?
  6. What is the course of action that best serves this overall understanding?
He offers these guidelines for doctors who have bad news to discuss with patients
  1. You sit down
  2. You make time
  3. You learn what’s most important to them under the circumstances--you listen
  4. You don’t talk more than half the time
  5. You use these key phrases: I wish things were different, I’m worried, If time becomes short, what’s important to you?
Ultimately, we want doctors who take time to understand what we care about most which in some cases may be to leave well enough alone. “Whatever the limits and travails we face, we want to retain the autonomy--the freedom--to be the authors of our lives.” A stated objective of hospice care is worth meditating on: “[the] ultimate goal is not a good death but a good life to the very end.”

See our 2020, 2019, 2018, 2017, 2016, 2015 and 2014 Reading Lists.

Key Quotes:
77 what the goal should be: “how to make life worth living when we’re weak and frail and
can’t fend for ourselves anymore

77 was also the goal of Keren Brown Wilson, one of the originators of the assisted
living concept

99 With limited time what people mainly want is comfort and companionship

103 the big question: how do people age without having to choose between neglect and
institutionalization

105 What’s missing from many nursing homes and assisted living facilities is the complete
ignorance of the staff to what connections and joys matter most to the
occupants/patients --and to figure out how to sustain them.

109 the medical system (particularly nursing homes) are designed for safety “but empty of
anything [its patients] care about.”

112 “I was confusing care with treatment.” mistake of young doctor taking over a nursing
home.

116 the three plagues of nursing life: boredom, loneliness, and helplessness

120 “Culture strangles innovation in the crib.”

122/272 Dr. Thomas wrote about his experience bringing animals into his nursing home:
“A Life Worth Living”

139 Central belief of these great facilities: you don’t need to sacrifice your autonomy just because you need help in your life.

140 “Whatever the limits and travails we face, we want to retain the autonomy--the freedom--to be the authors of our lives.”

142 The Pioneer Network--a club dedicated to the reinvention of Elder Care. https://www.pioneernetwork.net/

155 “How can we build a health care system that will actually help people achieve what’s most important to them at the end of their lives.” Author’s central question.

161 Ordinary medicine vs. hospice care: sacrificing the quality of your existence now for the possibility of gaining time later vs. efforts to have the fullest possible lives right now by focusing on different objectives.

171 Our medical system and culture is built on chasing the long shot--he calls it the “long tail”--the “medical equivalent of lottery tickets”--on treatments that likely won’t work but near nothing on preparing the patients for the certainty that the treatments won’t work.

172 “Hope is not a plan, but it is our plan.”

177 most doctors don’t discuss end of life care with cancer patients (only ⅓). Most of the ⅓ that did, enrolled in hospice care and had a more enjoyable end of life AND their families suffered less cases of depression

178 Cancer patients who saw a palliative care specialist, stopped chemo earlier, entered hospice earlier and lived 25% longer than those who didn’t!

179 4 central questions to ask early and throughout later years--at this time:

Do you want to be resuscitated if your heart stops?
Do you want aggressive treatments such as intubation and mechanical ventilation?
Do you want antibiotics?
Do you want tube or intravenous feeding if you can’t eat on your own?

180 Just having the above discussion brought one hospital’s end of life costs down to half the national average.

182 With terminal illness, most doctors focus on what people want on the treatment and associated options, palliative care specialists help patients to focus on the overall process, their anxieties, their own mortality, and the limits of medicine. There are general rules to do this:
You sit down
You make time
You learn what’s most important to them under the circumstances--you listen
Don’t talk more than half the time
Key Phrases: I wish things were different, I’m worried, If time becomes short, what’s important to you?
Key questions to ask include:

What do you understand the prognosis to be?
What are your concerns about what lies ahead?
What kinds of tradeoffs are you willing to make?
If your health worsens, how do you want to spend your time?
Who do you want to make decisions if you can’t?

187 What’s the actual function of medicine--this is a central question at the heart of all this. At its core it seeks to fight death and disease but death will always win. You want a doctor who knows when to surrender and not fight to an unneeded bitter end.

199 We want doctors who take time to understand what we care about most which is in some cases to leave well enough alone.

201 The best term for what we desire is “shared decision making” or an “interpretive relationship” where the doctor helps us determine what we want. This is almost a counselor role

206 Ask your doctor, what does this information mean to you? Author used the term “I’m worried.”

207 “Ask, tell, ask” when you have bad news to deliver: Ask what they want to hear/know, tell them the information, then ask what they understood.”

208 ODTAA syndrome: one damn thing after another

209 Understanding the finitude, the finality of one’s time can be a gift.

210 Autonomy: “you may not control life’s circumstances but getting to be the author of your life means getting to control what you do with them.”

232 One type of courage with terminal illness is deciding what matters most: one’s fears or one’s hopes.

234 Other good questions:
What are your biggest fears and concerns?
What goals are most important to you?
What tradeoffs are you willing to make?
What tradeoffs won’t you make?

243 In treating the sick and aged, doctors fail to recognize that people have priorities beyond merely being safe and living longer--they want to shape their own story to sustain meaning in life

244 With regard to assisted suicide, there’s a philosphical and real difference between letting people stop the external and/or artificial processes that prolong their lives and giving them the right to stop natural/inherent processes that sustain their lives.

245 “Our ultimate goal is not a good death but a good life to the very end.”

247 the aim of hospice care in theory is to give patients “their best possible day.”

248 the “dying role” is not to be forgotten--the chance for the dying to pass on their memories, wisdom, experiences, and wishes--to establish their legacies.

259 A doctor’s job goes beyond just ensuring health and survival--it must enable well-being--that is, the reasons one wishes to be alive.

When sickness comes, one must ask:
What is your understanding of the situation and its potential outcomes?
What are your fears and what are your hopes?
What are the tradeoffs you’re willing to make?
What is the course of action that best serves this understanding?

Monday, April 13, 2020

Kruse's Keys: Read "Art of Fiction" to Revel in the Master Writer


National Book Award winner John Casey has a great summary of Salter’s writing in the introduction (Casey was later sanctioned from teaching further at UVA due to sexual harassment and gender bias claims just as a slightly non sequitur FYI). 

In his inaugural lecture as a UVA Kapnick Distinguished Writer-in-Residence, Salter offered that “books are passwords”, this is the idea that among those who are well read--books are a connection, a filial link of brotherhood amidst theretofore strangers.  Reading Salter's lectures in this slim collection affirms the notions that I (most of us?) have about great and famous writers--about their life experiences and methods.
Take for example the glimpse that Salter offers from the end of his short story, “The Captain’s Wife” (later expanded to become Burning the Days).  The characters returns to a house after dinner, where they drink, makes toasts and read from their favorite books.  This is just the sort of activity that one imagines famed writers doing--their favorite passages at their immediate recall to conjure up at dinner parties etc.  

For any fan of Salter these lectures are essential reading, chocked full of autobiographical details on the author and his views on writing, literature, and life.  Below are my three favorite quotes from the book.

“Books mark a period or place, and then gradually they become that place or time.” Salter on the timelessness of certain books that become or qualify as literature.

“There comes a time when you realize that everything is a dream, and only those things preserved in writing have any possibility of being real.”

What happens next” is the central driving point--the “engine” of all literature. This is what good writing, good stories embody.

See our 2020, 2019, 2018, 2017, 2016, 2015 and 2014 Reading Lists.

Key Quotes:

xiii “No, everything I’ve ever learned, has come from books. I’d be in darkness without them” (from Burning the Days)

xxi “The short story does the work of a novel in 15 pages.” -Peter Taylor (Pullitizer Prize Winning author of A Summons to Memphis

xxx “It happens in an instant. It is all one long day, one endless afternoon, friends leave, we stand on the shore.” (from Light Years)

6 “Books are passwords” this is the idea that among those who are well read--books are a connection, a filial link of brotherhood amongst heretofore strangers.

11 “There was no iron that could pierce the human heart with as much force as a period in just the right place.” Salter quoting author Isaac Babel

12 “Instead I went to France, where you can always feel it’s worthwhile to be a writer and where I had always been able to write.”

15 “A good sentence in prose, should be like a good line in poetry, unchangeable, as rhythmic, as sonorous.” Salter quoting Gustave Flaubert

20 “Style is a preference; a voice is almost genetic, absolutely distinctive.” Salter on the development of a writer who begin by mimicking.

55 “But Monsieur Heller, after Catch 22, you never wrote anything that good again.” A question from a French journalist. Heller’s response: “Who has?”

61 “Books mark a period or place, and then gradually they become that place or time.” Salter on the timelessness of certain books that become or qualify as literature.

77 “There comes a time when you realize that everything is a dream, and only those things preserved in writing have any possibility of being real.”

Key Takeaways:

20 The beginning writer has no voice--instead their writing is a reflection of their influences

30 “What happens next” is the central driving point--the “engine” of all literature. This is what good writing, good stories embody.

32 For Garcia Marquez the most difficult part of writing a novel was the first paragraph. After spending months writing it, he noted that the rest of the story came easy because that first paragraph captured the style and tone of the novel

49-50 Famed and controversial author, Evelyn Waugh, noted how involved the difficult act of writing is--the act being the conglomeration, the sum of one’s experiences being processed and analyzed and polished and ordered.

50 Every writer aims to write a masterpiece (according to famed critic Cyril Connolly) and when someone succeeds it brings sorrow to all other writers who believe there to be a finite number of them in the universe.

50 Famed author John Irving always wrote the last line of his novel first. Then his writing process was just to write toward that line.

58 Never begin a sentence with an adverb--the sentence itself must be the revealer of action.

60-1 In Salter’s books the woman was always stronger. This is notably true in Light Years.

64 The end of Salter’s short story “The Captain’s Wife” (later to become Burning the Days), he offers a glimpse into how many of us imagine the life of famed writers: After dinner the group returns to one of their houses where they drink, makes toasts and read from their favorite books.

Key References (for further study):
https://www.nybooks.com/articles/2013/06/06/james-salter-glory-certain-moments-life/
viii “My First Goose” pivotal formative short story for Salter (by Isaac Babel)

xv Irvin Shaw another key writer for Salter, notably referenced in a chapter called “Forgotten Kings” in his memoir Burning the Days

xviii “Dirt”, “The Cinema”, and “The Destruction of the Goetheanum” three notable short stories from Dusk

xxi: A Summons to Memphis

1 Marguerite Duras The Lover

2 Balzac Old Goriot

5 Junichoro Tanizaki The Makioka Sisters and Miklos Banffy The Transylvanian Trilogy and Hermann Broch’s The Sleepwalkers

7 Robert Phelps The Literary Life

18 Maupassant “Ball of Fat”

22 Jack Kerouac The Town and the City

40 Celine Journey to the End of the Night and Death on the Installment Plan

50 William Kennedy Legs

56 James Jones From Here to Eternity

63 James Salter “The Captain’s Wife” which became Burning the Days

64 Noel Coward Cavalcade and Gerald Edwards Ebenezer le Page and James Joyce “The Dead” and Anna Karenina and Humboldt’s Gift and The Wapshot Chronicle and Robert Service, Stephen King, and Poe

66 Salter’s most important authors: Nabokov, Faulkner, Saul Bellow, and Isaac Singer